In terms of medication Layla is on pretty much everything she can be on for reflux. Prescription milk, gavison, ranitidine, domperidone and omeprazol. Each to be taken at different times of the day at different quantities. The medication has definitely helped her comfort levels as when she is sick it doesn't seem to hurt her as much and she is a lot more settled. We can now tell when the meds need adjusting because of her weight as she begins to be really unsettled again arching her back a lot and not sleeping very well.
We have also had a couple of reflux related hospital stays.The first was for an operation on a suspected Laryngomalacia which is basically a floppy tissue above the vocal cords that. falls into the airway when a child breathes in. If you read up on this it is something that can either cause reflux or the reflux can cause this to happen. We didn't get the operation because of her reflux even though they suspected it was all linked. We got it due to a weird noise Layla used to make while breathing. The operation fixed the Laryngomalacia but alas the reflux showed no improvement.
The second hospital stay was a PH study which meant a microchip on a tube was positioned in Layla's stomach for 24 hours recording how acidic her stomach was and how often she was sick. Alongside this I had to keep an activity sheet and write down everything from whether she sneezed to what activities we were doing to see if there was an causes for her reflux or whether certain parts of the day aggravated her reflux. The results we received a few days later didn't give us much good news just more confirmation that she had significant reflux and that we would need to up her medication once again.
Around the same time of the PH study Layla began refusing her milk during the day and therefore drinking as little as 12 ozs (360ml) in 24 hours. The Dr is worried (as am I) that Layla has now begun to associate any liquid with vomiting and is therefore refusing to drink it. As a result of this we are off to the dietitian soon to see what we can do about it.
We are currently waiting to see what this next lot of upping the medication does for Layla. We are hoping it does the trick and that she stops being sick and settles. If she still isn't right after this lastest medication increase we will be back in again for more tests.
It's not all bad news though, Layla is steadily gaining weight and is back up to the 9th percentile, where she was at birth, and seems to be meeting her milestones as normal.
Any other reflux babies out there? Any other mummies been there and done that? Would love to hear some stories of babies who have grown out of their reflux and any tips other mums might have on reflux babies.
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